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告知後のケア

 先週20日に、大阪へ行ってきました。ゆきこさんを始め、大阪ひだまりくらぶのみなさんとお会いすることができて、時間は短かったけど、とてもよい経験となりました。(みなさま、お世話になりました)

 帰りの新幹線の中で、自分がADHDと言われたときって、どうだったっけ?と思い返してみました。

 多分…という曖昧な言い方でなくて、「君はADHDだと思うよ」とはっきり言ってくれたのが、アメリカで小児発達心理学を専門としている大学院の先生でした。ぴょろのADHDを見抜いたのは、特殊教育学の教授と、行動心理学を教えている先生の2人でした。

 ぴょろのADHDが分かったときに、この教授(女性)が私に言ったことは、今でも忘れられません。

 「彼は、優れた才能のある子どもよ。あなたに育てる力があるから授かったのよ」

 行動心理学の先生は、ぴょろを見てこう言いました。

 「彼は、すごく敏感で頭のいい子だね。将来が楽しみだよ」

 私にADHDの告知をしてくれた発達心理学の先生は、告知した後で、こんな言葉をかけてくれました。

 「あなたには高い能力があるから、きっといいサイコロジストになれるよ。」

 誰も、私にADHDがあるから大変だよ、なんて、一言も言いませんでした。彼らは、私たちのいい所を伸ばすようにと励ましてくれたのです。

 ぴょろに関しては、子育てでいろんな思いを味わいながらも、どこかでこの2人の先生の言葉を信じてきて、最近になって確かに彼らが言っていることはその通りなのかもしれない、と(多少親バカも入っているでしょうが)思えるようになりました。

 そして、私はあの時の先生と同じような立場で仕事をするようになってから、発達障害について本人あるいは家族に告知した後のケアが本当に大切だということが分かるようになってきました。

 大人の発達障害は、診断自体、専門医が極端に少ないこともあって、とても難しいのですが、更に診断が確定して本人に告知された後のフォローはほとんどなされていないのではないかと思います。

 単にADHD、高機能自閉症、広汎性発達障害、アスペルガー症候群…と名前だけ告げられても、それがいったいどういう状態で、告知後はどうすればいいのかということなど、告げられた人の不安を減らし将来の見通しをある程度立てられるだけの情報が得られ、心理的な援助が受けられるにはほど遠い現状だと感じます。

 本当は、告知した後からが、長い道のりの始まりなんですけどね…。

 修士課程の時は、アメリカ人の中に混じって勉強し、発達障害を抱える大人の人たちにも会いましたが、彼らがすごく明るくて前向きだったのは、おそらく彼らの性格的なものもあるかもしれませんが、彼らの周囲の人たちの発達障害に対する理解の仕方が、日本人とは大分違うことが大きく影響しているのかもしれない、と思います。(ADHDも50年前から研究されていて…歴史が全然違います)

 少なくとも発達障害を抱えている事を、決して不利だと思わないで生きられるような、そんな環境を整えていくためには、やっぱり発達障害支援法が一日も早く制定されて、まず法の枠組みができ、そこから少しずつ中身を整えていくしかないのかなあ、と考えたりしています。

 私自身が先生方の励ましに大分救われたように、私も発達障害の方々を自分なりに力づけられるような人物になりたいと思っています。


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