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広汎性発達障害:説明のむずかしさ

一昨年の暮れに、ぴょろ(子供)の授業参観が終わって、同じクラスの一人のお母さんに呼び止められた。しばらく立ち話となり、話題が子育てになった。そのお母さんには3人の子供がいるが、一番下が次の年に1年生になるという。私は少し驚いた。お母さんに手を引かれたその子は、体の大きさが3歳半くらいだった。言われなければ、これから幼稚園かと思うほど幼い感じだった。

話はさらに続き、その子は言葉も語彙が少なく発音がところどころ不明瞭で、保育園で保育士さんたちが聞き取れなくて苦労したという。お母さんは注意して聞けば何を言っているか分かるから大丈夫だ、と話していたが、私がその子に話しかけてみたところ確かに聞き取りにくい点があった。

私は、保育園でいろんな子供達と一緒にいるときはどうか、と尋ねてみた。彼女は、他の子供よりは発育がゆっくりだけど、段々追いついているんじゃないかなあ、と明るかった。

よく見ると、軽いが骨の発育不全もあるようだった。明らかに成長ホルモンの不足した状態だ、と思った。それだけでなく、全般的な発達の遅れも明らかだった。しかし、お母さんはあまり気にしていない様子。そこで、お母さんに意見していると感じられないように気を遣いながら、それとなく私の考えを伝えてみた。

「あのね、個人的な意見として言うけど、6歳の年齢からは少し体が小さいと思うよ。」
「うん…まあ、そうだよね」
「多分、どんどん大きくはなると思うけど、体の小さい子供達の中には、成長ホルモンっていう、骨や体の発育に必要なホルモンの量が少ないこともあるから、念のために調べてみたらどうかなあ…」
「う~ん…そうだねぇ」
「他の子供達とはよく遊ぶの?」
「兄弟げんかもするし、保育園でもそれなりに遊んでるみたいよ」
「(小学校就学前の)先生との面接では何か言われなかった?」
「体格は小さいですね…と言われたけど、後は別に。先生に来年からお世話になります、と言ったら笑っていたし」

念のために、専門医のいる病院の場所は教えたが、それ以上は言えなかった。その場の空気が変わったように感じたからだ。

結局そのお母さんは、病院へは行かなかったようだ。その子は去年、小学校に入学した。お母さんとは気まずくはならずにすんだが、その後会ってもその話には触れたくないようだった。運動会の時、徒競走で少し遅れながら懸命に走るその子を見ていて、少し悲しかった。今でも言葉は明らかに遅れているし、体格もかなり小さめだが、お母さんはそれなりに成長していることで安心しているのかもしれない。しかし、2,3年になる頃には、他の子供達との差はもっと歴然となるだろう。その時に、私の言ったことを思い出してくれれば、と思っている。

この経験から、今でも発達障害(広汎性だけでなく、ADHD/LDなども含めて)について親に話さなければならないときは、タイミングや言葉にとても神経を使っている。

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Comments

Sanaさん、こんにちは。また遊びに来ました~。
お母さんに子どもの状態を意見するのって、本当に難しいですね。黒よりグレイであるほど認めたくないという気持ちは強くなると思います。同じ親から言われるほうがいいだろう、ということで、私はその役目を何度かおおせつかったことがありますが「ちょびくんとうちの子は違うから!」と吐き捨てられるように言われたこと、今でも心のしこりになっています(こう見えてけっこうデリケート)。今ではそのお母さんも一生懸命前向きにがんばってますけどね。診断を受けることで「障害児にしてしまう」という意識があるのかなぁ。診断を受けることってレッテルを貼るんじゃなくて、困っている子どもの支援の方法をみんなで探す第一歩なのにね。

Posted by: めめ | 2004.01.19 at 07:34 PM

>めめさん

 めめさんのおっしゃる通りでしょうね。子供の障害を受け入れることは、レッテルを貼るどころか、本当はその子がどう生き、何を必要としているかを見極めるためには避けて通れないものなんですが。

 受け入れる過程はそれぞれだけど…やっぱり告知すると泣かれることが多いので、この役目は私の中では一番辛いところです。

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